Management, coordination, development of the organization and coordination of investments.

• Organizing leader group meetings and reports on Biobank Norway to the Research Council of Norway (RCN) and other stakeholders
• Participates actively in the European biobank infrastructure BBMRI-ERIC and other international biobank initiatives
• Organizing national and international conferences on biobanking
• Communicates actively with the public and biobank donors through our web site and other initiatives
• Investments; automated -80 storage at Oslo University Hospital

Deliverables:

• Establish a joint national strategic interest forum and an operational team coordinating the activities of partners related to the 'use case'
• Select, plan and design representative 'use cases' for personalized medicine using population and clinical biobanks, and integrate these with registries and clinical data
• Develop a common data management policy in collaboration with and approved by all partner institutions
• Establish an integrated infrastructure that utilizes biobanks for research in personalized medicine using 'use cases'
• Test and improve infrastructure using personalized medicine use cases and develop Standard Operating Procedures (SOP)

Deliverables:

• Establishment of four working groups
• Build hospital based general biobanks bridging regional boundaries
• Establish biobanking within community health care
• Develop possibilities for industry collaboration with clinical biobanks established in BN3
• Clarify legal and ethical challenges for hospital based research biobanks

Deliverables:

• Organize a help desk for project oriented analysis support
• Workshop/course in large-scale data-management and analysis
• Assist HAP in developing a cohort explorer based on use-cases developed in WP2
• Ensure that the development of HAP meets the needs of biobank researchers
• Develop procedures and solutions for data sharing through a Norwegian EGA node
• Relevant tools for large-scale analysis, analysis of "rare-variants" and statistical power

Deliverables:

• Establish networks for "value management" of digital biobank data
• Develop frameworks for valuation / management of data adapted to digital biobank data
• Guidelines for the storage and handling of digital tissue images in biobank archives (digital pathology)
• Guidelines for storing and handling digital gene samples and other large-scale biobank archive datasets
• Data Import Guidelines from Digitizer, Data Export Guidelines for Large Digital Biobank Samples

Common Service Biobanking has established a biobank help desk, and organizes disseminated services such as:

• Sample handling
• Quality management
• Technical solutions
• Lab ware
• DNA and RNA extraction, quality studies
• LIMS/Data base solutions
• Biobank constructions/establishments
• Energy consumption and recycling

Contact help desk

Hva gjør vi?

• Vi bidrar til å sikre optimal bruk av norske forskningsbiobanker med en høy etisk standard
• Vi arbeider for å fremme offentlig engasjement rundt bruken av norske biobanker
• Vi bidrar til at arbeidet i Biobank Norge utøves i tråd med juridiske og samfunnsmessige krav
• Vi rådgir biobankforskere og institusjoner i forhold til etiske utfordringer
• Vi utvikler verktøy, retningslinjer og informasjonsmateriell som hever bevisstheten om viktige etiske utfordringer ved biobankforskning
• Vi undersøker forskeres og deltakeres holdninger til etiske spørsmål ved biobankvirksomhet

Hvilke sentrale spørsmål er vi opptatt av? 

• Bør biobankdeltakere gis anledning til å få tilgang til individuelle genetiske forskningsdata?
• Hvordan bør en beskytte personvernet til biobankdeltakerne når data deles med forskningsmiljøer i andre land?
• Hvilken etiske utfordringer dukker opp ved et tettere samarbeid mellom offentlige forskningsbiobanker og legemiddelindustrien?
• Hvilken rolle bør biobankdeltakerne ha i å påvirke utforming og gjennomføring av forskningsstudier?
• Hvordan utvikle samtykke- og kommunikasjonsformer som sikrer deltakernes interesser og gir god forskning?